Community Learning Space

The infraNET Project and 
Waterloo Institute for Health Informatics Research
at the University of Waterloo

present ...

From Data to Health Information


Jean-Marie Berthelot 
Manager, Health Analysis and Measurement Group
Statistics Canada

Wednesday, February 25, 2004
3:00 p.m. - 4:30 p.m.

Davis Centre, Room 1302
University of Waterloo

This seminar is of interest to Health and IT Executives, IS/IT Staff, Faculty and Students.
There is no charge for this event, however, we ask that you register to attend.
Seating is on a first-come, first-served basis.

Presentation Archive 2003-2004


Detailed health information is necessary for the appropriate management of service delivery programs, for understanding and monitoring population health, and for health and health services research in general. This presentation will focus on generating information for health and health services research from basic data.

Two approaches will be discussed:

  • record linkage as a means to maximize the use of data already collected.
  • microsimulation modeling as a health policy tool.

The presentation will provide a brief overview of health information needs for health and health services research, discussing the need for record linkage and the requirement to find a balance between public good and privacy in conducting such studies. It will provide some examples of research questions that can only be answered through record linkage. Microsimulation modeling will be described and examples of its use in informing health policy will be presented.

Jean-Marie Berthelot became manager of the Health Analysis and Modeling Group at Statistics Canada in 1991, directing research projects in health economics, population health and health services research. He has developed a strong expertise in health economics through performing cost of illness studies for lung, breast and colorectal cancers and by overseeing the evaluation of a breast cancer prevention strategy, a colorectal cancer screening program and a series of cost-effectiveness studies for lung and breast cancers new treatments. Mr. Berthelot is a recognized expert in generic health status measures and their use in monitoring population health, and is active in health services research, with a specific research interest in the creation of new health-related databases through record linkage. He accumulated valuable experience in the latter when he oversaw the record linkage of the 1986 Census of the population to provincial health care records for a sample of Manitoba residents.

He is the principal investigator for the Baseline indicators of mortality for monitoring health disparities project, a 10-year mortality follow-up of the 1991 population census about systematic differences in mortality across regions and between socio-economic groups in Canada. He is also the principal investigator on the Population Health Impact of Diseases in Canada which builds on burden of disease work developed by the WHO. In 2001, he has oversaw the conceptualization, implementation and dissemination of the Health Services Access Survey, the first Canadian survey to collect information on barriers to care, waiting times for specialized services and acceptability of waiting for care. He is currently involved with the analysis of the 2003 Joint Canada/U.S. Survey on Health, which includes a comprehensive section on health services.

In 2001, he received McMaster University s Labelle Lectureship, awarded to a young investigator engaged in multi-disciplinary health services research who is challenging existing methods or accepted ideas in health services. He has co-authored more than 40 papers. He is a member of Statistics Canada s steering committee on analysis and research and a member of the Task Group on Health Disparities of the Advisory Committee on Population Health and Health Security of the Conference of Deputy Ministers of health.

For more information

Shirley Fenton
Managing Director, WIHIR
The infraNET Project
Computer Systems Group, University of Waterloo
(519) 888-4074

Seminar Hosts

This seminar is hosted by the Waterloo Institute for Health Informatics Research (WIHIR) and The infraNET Project, University of Waterloo.

The infraNET Project, initiated by the University of Waterloo in 1996, is a partnership to advance Web and Internet technologies. Its founding partners are: LivePage (now part of Siebel), MKS, Open Text, RIM, Sybase (Waterloo) and Waterloo Maple.

We also gratefully acknowledge the assistance of the Institute for Computer Research, University of Waterloo.