infraNET Project and
Waterloo Institute for Health Informatics Research
at the University of Waterloo
From Data to Health Information
Manager, Health Analysis and
February 25, 2004
3:00 p.m. - 4:30 p.m.
Davis Centre, Room 1302
University of Waterloo
This seminar is of
interest to Health and IT Executives, IS/IT Staff, Faculty and Students.
There is no charge for this event, however, we ask that you
register to attend.
Seating is on a first-come, first-served basis.
Detailed health information is necessary for the appropriate
management of service delivery programs, for understanding and
monitoring population health, and for health and health services
research in general. This presentation will focus on generating
information for health and health services research from basic data.
Two approaches will be discussed:
- record linkage as a means to maximize the use of data already collected.
- microsimulation modeling as a health policy tool.
The presentation will provide a brief overview of health
information needs for health and health services research, discussing
the need for record linkage and the requirement to find a balance
between public good and privacy in conducting such studies. It will
provide some examples of research questions that can only be answered
through record linkage. Microsimulation modeling will be described and
examples of its use in informing health policy will be presented.
Jean-Marie Berthelot became manager of the Health Analysis and
Modeling Group at Statistics Canada in 1991, directing research
projects in health economics, population health and health services
research. He has developed a strong expertise in health economics
through performing cost of illness studies for lung, breast and
colorectal cancers and by overseeing the evaluation of a breast cancer
prevention strategy, a colorectal cancer screening program and a series
of cost-effectiveness studies for lung and breast cancers new
treatments. Mr. Berthelot is a recognized expert in generic health status measures
and their use in monitoring population health, and is active in health services
research, with a specific research interest in the creation of new health-related
databases through record linkage. He accumulated valuable experience in
the latter when he oversaw the record linkage of the 1986 Census of the
population to provincial health care records for a sample of Manitoba residents.
He is the principal investigator for the Baseline indicators
of mortality for monitoring health disparities project, a 10-year
mortality follow-up of the 1991 population census about systematic
differences in mortality across regions and between socio-economic
groups in Canada. He is also the principal investigator on the
Population Health Impact of Diseases in Canada which builds on burden
of disease work developed by the WHO. In 2001, he has oversaw the
conceptualization, implementation and dissemination of the Health Services Access
Survey, the first Canadian survey to collect information on barriers to care,
waiting times for specialized services and acceptability of waiting for care.
He is currently involved with the analysis of the 2003 Joint Canada/U.S. Survey
on Health, which includes a comprehensive section on health services.
In 2001, he received McMaster University s Labelle Lectureship,
awarded to a young investigator engaged in multi-disciplinary health services research
who is challenging existing methods or accepted ideas in health services.
He has co-authored more than 40 papers. He is a member of Statistics Canada
s steering committee on analysis and research and a member of the Task Group
on Health Disparities of the Advisory Committee on Population Health and Health
Security of the Conference of Deputy Ministers of health.
For more information
Managing Director, WIHIR
The infraNET Project
Computer Systems Group, University of Waterloo
This seminar is hosted by the Waterloo Institute for
Health Informatics Research (WIHIR) and The infraNET Project,
University of Waterloo.
The infraNET Project, initiated by the
University of Waterloo in 1996, is a partnership to advance Web and
Internet technologies. Its founding partners are: LivePage (now part
of Siebel), MKS, Open Text, RIM, Sybase (Waterloo) and Waterloo Maple.
We also gratefully acknowledge the
assistance of the Institute for Computer Research, University of